THE WASHINGTON POST THURSDAY, DECEMBER 1, 1994 CYBERSURFING DIRECTIONS FOR A HEAD TRIP Perturbations, pleasures, and predicaments on the information superhighway: If you've heard about ThisIsCrazy on the Internet and try to subscribe to it, you will find yourself redirected to MADNESS, and if you are anywhere in the bubble of the bell you might think that's because CRAZY is politically incorrect and that MADNESS is a kinder and gentler appellation. But the fact is that ThisIsCrazy has too many characters, 11, and St. John's College, the list manager for Sylvia Cara's MADNESS group, insists on staying under the DOS limit of eight. Inside, however, you will find plenty of characters whose motives and agendas are 100 percent upfront, yet dusted with an overlay of mist, like madness itself, so that in any attempt to pin down reality the target quickly slips away. Caras, who bills herself publicly as the Madwoman of Santa Cruz, is a 59-year-old survivor of Western Civilization's system of mental illness treatment, or punishment, depending on your point of view. The board is like opening up one of the sliding doors of the original DOOM, taking a quick look inside and then, in terror, slamming the door down while you regroup, and try to figure a strategy. But I quickly went back in. The chambers are populated by what are described in the parlance of the group as c/s/x, meaning consumers, survivors and ex-patients in the mental health services industry. As defined recently by one member, consumers are those who are still using services, and broadly includes those who have a belief in the medical model of treatment, although this is open to question, as is everything else in this group. Survivors are those who genrally have rejected the medical model and consider themselves survivors both of whatever made them feel crazy and the "treatments" they received. There is a lot of discussion of drugs, such as Prozac, and a lot of knowledge about them. There is concern for the stigma attached to those who have been treated for mental illness, and a lot of questing for reform. In the words of another member: "We are mostly not professionals. We are people who experience mood swings, fear, voices and visions. This list focuses more on advocacy and system change." The list founder, Sylvia Caras, started the operation last January with 17 subscribers as PEOPLEWHO, changed it to ThisIsCrazy in April, and then to MADNESS last month. Caras is a 1956 Wellesley graduate who had a husband once and has a grandchild now and who has been put away by a loving family and has received involuntary electroshock treatments, and she defines the list as a way to "reclaim the language" of mental illness and health. "In the last year all the pain I've been through, all the experiences have all come together here, on the Internet, in parallel and in focus," she said in a telephone conversation. "I'm feeling better, the homeopathic care I've been using is helping, the healing techniques I have encountered here in California are working. I am using myself fully. >From my generation there was supposed to be no career fulfillment for women, and here I am, finding new real vision, sort of a Grandma Moses of the Internet." Not the least of this seems to be the semi- anonymous sharing of experience, strength and hope that goes on in MADNESS. -Robert H. Williams williamb@twp.com -GETTING THERE: Send an e-mail message to LISTSERV@SJUVM.STJOHNS.EDU and in the body of message type SUBSCRIBE MADNESS [your name]. /lj i thought the piece was nice too. i'm glad you liked it, and you are welcome. take care.--karen marrero, the washington post. ---------- From: Sylvia Caras To: marrerok; garreau Cc: williamb Subject: Directions for a Head Trip Date: Sunday, December 04, 1994 5:42AM Having our advocacy work noted in *The Washington Post* is a very special validation. And Williams coverage was clear and fair. Thanks for putting MADNESS on the map.